chronic lymphocytic leukemia (CLL) is one of the least known hematological tumors in the Spanish population, and is correctly diagnosed despite only one in six people (16.9%) being the most common type of leukemia in adults and representing a third of leukemia cases. recognizes from. Happens every year in our country1,2. This follows from the survey promoted by ‘Perception of hematological tumors in Spain’. astraZeneca Coincides with the month of awareness of oncological blood diseases, which has exposed the great ignorance of the Spanish population about this type of pathology.
The survey, conducted in June 2022 and following the CAWI method, has a sample size of 5,001 people of legal age. More than half of those surveyed are unable to locate the affected tissue correctly hemorrhagic neoplasmAce specifically, only 46.8% indicate that hematological tumors are located in the blood, bone marrow and lymph nodes. Furthermore, when respondents are asked to mention hematological tumours, almost half of the population (47.7%) are unable to do so.
However, when asked directly about the pathology, two of each Three respondents (65.0%) related leukemia as a blood disease; four out of ten (40.4%)identify lymphoma as a pathology of this type, whereas only 14.7% of those surveyed relate myeloma to hematology.
Comparing the knowledge of the Spanish about the different types of leukemia, the statistics are similar. Thus, 25.3% of those surveyed know Acute lymphocytic leukemia (ALL), 23.8% chronic lymphocytic leukemia (CLL); 19.5% acute myeloid leukemia (AML) and 18.2% chronic myeloid leukemia (CML).
“The data from this survey support what we see every day in our practice, and that is that there is a great lack of knowledge about hematological tumors in general. There are many types of oncological blood diseases, and each one has different types of cancer.” Symptoms, development and treatment are completely different. For this reason, it is very important to carry out this informative and pedagogical task, giving the necessary tools to both the patients and their environment”, he explains. Francesc Bosch, Head of the Hematology and Hemotherapy Service at the Val d’Hebron Hospital in Barcelona, and President of the Spanish Chronic Lymphocytic Leukemia Group (GELC).
LLC, one of the great unknowns
As you get down to the specifics of the LLC, such as its forecast or its growth, 25.7% associate it with a fatal disease and 15.5% think it has a cure. In contrast, CLL is a chronic disease, which particularly affects older people, and whose prognosis and development may depend on the patient’s general health status and potential comorbidities present at the time of diagnosis and treatment.
On the other hand, the fact that a possible diagnosis is in front or in the face a doubt 88.3% Those surveyed would ask for information about CLL in a specialist’s office, followed by primary care physician (28.8%) and patient associations (28.3%), while only one in five (20.8%) To look for information about the LLC will go to the Internet.
Marta Moreno, Director of Corporate Affairs and Market Access astraZeneca It highlights that the LLC’s ignorance is compounded by the problem of its insurmountable gravity. “The outlook and outlook of LLCs has changed radically in recent years. Currently, with proper treatment and follow-up by hematology services, Patients can lead practically normal lives”, Furthermore, he explains that “at AstraZeneca our goal is to make cancer chronic or treat it and eliminate it as a cause of death, but we also want to help improve the quality of life of patients, that is.” That’s because we’ve made it true and scientifically verified information available to the entire population. LLC Available in our patient portal.
The role of the caregiver in this type of illness
One of the key aspects of the survey on hematological tumor perception has been the role of the caregiver. As revealed from the results, 41% think the person who cares for the patient most often is the partner It is followed by a health professional (25%) and children (15%). In addition, one in every eight respondents (12.3%) believe that it is the patient himself who takes care of himself.
According to the age groups, it is clear that, from 35 years, The couple is considered to have the greater extent (43%) as the one who cares the most for the patient, whereas, among the youngest, it is believed that, primarily, they are children (22%), Also, as age progresses, the opinion that the task falls more often on an outside caregiver diminishes. Finally, only 4.7% of people think that the person who most often cares for a patient with CLL is an outside caregiver.
This opinion contrasts with the fact that the most common profile of a patient with CLL is an older person, who has an average age of Diagnosis of about 72 years. In addition, almost all of these patients have other concomitant diseases such as diabetes, heart failure or chronic lung disease.