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Saturday, January 28, 2023

Heidi Crothers’ fight to keep fetuses with Down syndrome from being aborted until the end of pregnancy

In United Kingdom Abortion is permitted up to 24 weeks of pregnancy. but if the embryo is down syndrome A woman can choose to have an abortion at any time during her pregnancy, even up to the day of delivery.

It’s discriminatory to Heidi Crouters. ,law should be same for allsays this 27-year-old Briton, who is determined to get his country’s courts to modify that clause abortion act (abortion law) dating from 1967.

The young woman told BBC Mundo it is a very personal battle for her, as she too was born with an extra chromosome, the genetic disorder that causes Down’s syndrome.

“I want to fight for the rights of the unborn with Down syndrome so that they have the same rights as everyone else,” she explains.

“What defines us as human beings who we are, not what our problems are“, he says.

Her parents wrote a book about Heidi’s childhoodheidi crower

For now both the Supreme Court (High Court) as an appeal your request has been declinedStating that the present norm does not curtail the rights of persons with disabilities.

But Heidi hasn’t given up and has already announced that she will take up her case. before the Supreme CourtSupreme Court of Judiciary.

“Surprise Package”

Speaking by video link from the English city of Coventry in central England, the activist said she understood the fear many parents feel when they learn their child has trisomy, the formal name for the genetic disorder. Is.

“My parents only found out when I was born, and I had Down’s the first thing they felt was fear“, Report.

“They didn’t know what to expect, they thought I would never be able to be independent, that I would never be able to marry.”

Heidi During The Don'T Secreten Us Out Campaign
Heidi during the Don’t Secreten Us Out campaignheidi crower

Also, like many children with Down syndrome, Heidi had health problems,

“The first year of my life was very difficult because I was born with a hole in my heart and they had to operate on me. I was in and out of hospitals. I still have the scar on my chest,” he revealed.

“It almost took me losing my parents to start loving me when they realized I was just a kid who needed love,” she says.

They fell in love with her so much that even when she was young he wrote a book About his childhood, which is called “Surprise Package”.

The third of four children, Heidi grew up with two brothers and a youngest sister. They went to the local school together – she with the help of an inclusive teacher – and when she graduated from high school she started working in a children’s hair salon and studied customer service at a higher institution.

She went alone at the age of 20“Two buses from my parents’ house,” he says. When the pandemic hit, the hair salon, like many other businesses, closed.

However, Heidi had other distractions during her long period of restrictions: she kept a long distance relationship with James, a young man whom she had met through her second cousin, and who lived about four hours from Coventry.

Heidi and James, who also has Down syndrome, fall in love and become engaged a year later.

to think that my parents were worried that I would never get married and I finally had three ceremonies”, laughs the young woman, explaining that, because of the quarantine, she had to organize three events, first a civil one and a small celebration, and then a more traditional and bigger one when Covid allowed it.

James moved into his apartment, where the couple still live.

100% abortion

Heidi began political activism in 2018, after being introduced into the public health system by the British government An alternative test for pregnant women Which allows through a non-invasive test to determine whether the fetus has Down syndrome or not.

The goal was to reduce the number of pregnant women who resort to risky diagnostic tests to rule out an abnormality.

But critics such as Heidi warned that this would lead to more women deciding to abort babies with Down’s.

guess today 90% of British pregnant women Those who receive this diagnosis decide to terminate their pregnancy.

,If there are more tests, fewer and fewer babies will be born, In some countries, like Iceland, 100% of babies with Down’s are miscarried,” he says.

Heidi joins NGO don’t screen us out (Don’t Filter Us), are convinced that these abortions happen “because people aren’t getting enough information.”

“Many parents like me are afraid of what they don’t know. And the Institute of Medicine tells them net negativesThis is why many people choose to have an abortion”, he explained.

Heidi admits that children with Down’s need more support, as they often have learning difficulties and often also have heart, vision, hearing, digestive or endocrinological problems.

But consider that this is not a justification for allowing fetuses with trisomy to be aborted. out of bounds Which exists for children with disabilities.

“We don’t want to be seen as a problem … there is no perfect child”, He stressed that parents of children with Down syndrome in their country can turn to aid organizations for support.

court battle

Heidi tells that she abortion act Soil affects fetuses with Down syndrome.

“The law also allows abortions throughout pregnancy easy fixes, It’s a shock,” he says.

Literally, the text states that abortion can be extended beyond 24 weeks of pregnancy when “there is a substantial risk that, if the child is born, it will suffer physical or mental anomalies” , such that he would be severely handicapped”, something that is still included today below.

Lynn Murray D don’t screen us out He told BBC Mundo that other countries, such as Iceland and Denmark, also have laws that allow abortions until the end of pregnancy in cases of Down syndrome or other disabilities, and that almost all babies with trisomy are aborted in those countries. Are being given.

This is a complex subject.

For Heidi, British law, enacted more than half a century ago, is completely out of date.

“When it was approved, people with Down’s couldn’t go to school and were admitted to institutions. They didn’t have the treatments or the technology that exists today”, he explains.

The young woman makes it clear that she respects the right of women to choose whether or not to continue with a pregnancy, but believes that no distinction should be made between children with disabilities and children with disabilities.

“Judges say the law doesn’t affect the rights of people living with Down’s, but I feel stigmatized,” she says.

“When I look at my nephew, who is a child, I wonder why my life is less valuable than his. Or my mother’s or my father’s.”

“You have to stop thinking of Down with the archetype of decades ago, and see it in a new, more positive light,” he asks.

“People need other different people, we need diversity,” he answers a question about why he thinks a world without people with Down syndrome would be a bad thing.

“Yes, being a child with Down’s syndrome is difficult, but the rewards are huge in the end,” says the activist, who recently had the privilege of writing the second part of the biography, which her parents dedicated to her in 2003. did. ,

“I’m Just Heidi: Living to the Fullest with Down Syndrome”—which was published by her uncle’s editorial office—describes her adult life, including her legal battles, her married life, and her work as a teacher for children with Down syndrome. His current job as an associate includes. ,

The title of the book alludes to a concept she reiterates during this interview: “I am not a syndrome, I am a person, I am Heidi.”

“We are all wonderful just the way we are.”

bbc mundo

Conocé Trust Project
World Nation News Desk
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